Онлайн (Онлайн)ISSN 2313-1519
Баспалық (Печатный) ISSN 1812-2892
Тұжырымдама (Резюме) - The emerging needs of effective communication in palliative end-of-life care: a qualitative review
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Suantak Demkhosei Vaiphei, Devendra Singh Sisodia

ABSTRACT

In dealing with terminal ill patients the ability to communicate effectively is the most important among all the various existing skills needed in palliative end-of-life care. Being with terminal illness is a time when patients were overwhelmed with several emotional feelings and unwanted thoughts. The health care providers at this point need to listen to the wishes of the dying individuals by communicating with them in the most appropriate way. Effective communication is the fundamental component in building the physicians and patient’s relationships and in building a trust towards one another for quality decision making at the end of life. However, due to the lack or absence of good communication in the Indian health care setting, most of the terminally ill patients received unwanted life-sustaining treatments alongside the inappropriate care, which they may not prefer, if they were asked about their preferences of care in their dying process. It is to be noted that, effective communication enables patients and family to make quality treatment decision and to meet their preferences for end of life care. Especially, when it comes for breaking the bad news to the patient’s and their family, effective communications plays an important role in the face of many barriers. Thus, the present study is form with the aim to improve quality of life through effective communication skills. The study highlights some guiding principles and objectives for physicians and other care providers when, how, and whom to communicate and break the bad news without hurting the sentiment of the dying patient and family.

Key words: end-of-life care, effective communication, decision making, quality of life, bad news

Corresponding author: Santak Demkhosei Vaiphei, Clinical Psychology Department, Bhupal Noble's University, Rajasthan, India. Email: gdsuantak@yahoo.com

 

REFERENCES

1. APCA-African Palliative Care Association. A Handbook of Palliative Care in Africa, 2010. Eds. Julia Downling et al. http://aidsfree.usaid.gov.pdf. Accessed date: December 27, 2017.

2. Hawryluck, Laura. Communication With Patient and Family. Ian Anderson Program in End-of-Life Care Module 5. 2000. https://www.cpd.utoronto.ca/endoflife/Modules/ communications%20module.pdf. Accessed date: March 12, 2017.

3. Holland, JC, & Chertkov, L. Clinical Practice Guidelines For The Management Of Psychosocial And Physical Symptoms Of Cancer: Improving Palliative Care For Cancer: Summary And Recommendations. National Academy Press. 2001; ISBN: 0-8261-1474-8.

4. Quill, E Timothy. Opportunities for Psychologists in Palliative Care. Journal of American Psychologist. 2014; 69(4):364-76. https://doi.org/10.1037/a0036735

5. Center for Bioethics, University of Minnesota. End-of-Life Care: An Ethical Overview. Fact Sheet Updated Febuary, 2004. http://www.ahc.umn.edu/img/assets /26104/End_of_Life.pdf. Accessed on January 27, 2018.

6. Myatra SN. Salins, N. Iyer, S. Macaden, SC. Divatia, JV. Muckaden, M. Kurkarni, P. Simha, S. Mani RK. End-of-life care policy: An integrated care plan for the dying: A Joint Position Statement of the Indian Society of Critical Care Medicine (ISCCM) and the Indian Association of Palliative Care (IAPC). Indian J Crit Care Med. 2014; 18(9):615-35. https://doi.org/10.4103/0972-5229.140155

7. Royal College of Nursing. Foundamental of Nursing Care at the End-of Life. FACT Sheet Upgated Febuary, 2015. http://www.rcnendoflife.org.uk/communication/. Accessed on Febuary 15, 2018.

8. Irish Hospice Foundation. End-of-Life Care Resources: Caring for the Dying Patient Version 1. Fact Sheet, 2013. http://hospicefoundation.ie/wp-content/uploads/2013/04/7 Caring-for-a-Dying-Patient.pdf. Accessed on June 20, 2018.

9. Sleeman, K.E. End-Of-Life Communication: Let's Talk About Death. J R Coll Physicians Edinb. 2013; 43(3):197-9. https://doi.org/10.4997/JRCPE.2013.302

10. Shaw, GB. The single biggest problem in communication is the illusion that it has taken place. https://philosiblog.com/2012/01/06/the-single-biggest-problem-in-communication-is-the-illusion-that-it-has-taken-place/. Accessed from the web on September 27, 2018.

11. Curtis, Randall J & Patrick, D. L. Barriers to Communication About EndofLife Care in AIDS Patients. Journal of General Internal Medicine. 1997; 12(12):736-741. https://doi.org/10.1046/j.1525-1497.1997.07158.x

12. Marie Curie. Dying to Care: A Report into Social Care at the End of Life. https://www.mariecurie.org.uk/media/press-releases/scottish-social-care-report/148518. Accessed on January 12, 2018.

13. World Health Organization. WHO Definition of Palliative Care. who.in/cancer/palliative/definition/en. Accessed on Febuary 11, 2018.

14. Visser, Mieke. Deliens, Luc. & Houttekier, Dirk. Physician-Related Barriers to Communication and Patient-and Family-Centred Decision-Making Towards the End of Life in Intensive Care: A Systematic Review. Critical Care Med. 2014; 18(6):604. https://doi.org/10.1186/s13054-014-0604-z

15. Knauft, Elizabeth. Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and Facilitators to End-of-Life Care Communication for Patients With COPD. CHEST. 2005; 127(6):2188-96.
https://doi.org/10.1378/chest.127.6.2188

16. Stapleton, R. Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Association of Depression and Life-Sustaining Treatment Preferences in Patients With CODP. CHEST. 2005; 127(1): 328-334. https://doi.org/10.1378/chest.127.1.328

17. Sleeman, KE. End-of-Life Communication: Let's Talk About Death. J R Coll Physicians Edinb. 2013; 43(3):197-9. https://doi.org/10.4997/JRCPE.2013.302

 

Көлем (Объем) 3, Сан (Число) 53 (2019)