Challenges in Healthcare Access and Social Inclusion of Children with Autism Spectrum Disorder: Evidence from Kazakhstan and International Studies
Svetlana Mofa 1,
Bauyrzhan Omarkulov 2,
Nailya Delellis 3,
Karina Nukeshtayeva 4 * More Detail
1 Doctoral student of Public Health program, Karaganda Medical University, Karaganda, Kazakhstan
2 School of Medicine, Karaganda Medical University, Karaganda, Kazakhstan
3 Health Administration Department, Central Michigan University, Mount Pleasant, Michigan, USA
4 School of Public Health, Karaganda Medical University, Karaganda, Kazakhstan
* Corresponding Author
J CLIN MED KAZ, Volume 23, Issue 4, pp. 95-102.
https://doi.org/10.23950/jcmk/19046
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Author Contributions: Conceptualization, S.M., K.N.; methodology, K.N., B.O. and N.D.; validation, S.M., N.D.; formal analysis, K.N.; investigation, K.N., S.M. and B.O.; resources, B.O.; data curation, K.N.; writing – original draft preparation, K.N., S.M.; writing – review and editing, B.O. and N.D.; visualization, K.N.; supervision, B.O.; project administration, K.N. All authors have read and agreed to the published version of the manuscript.
Data availability statement: All raw data underlying the findings of this study can be obtained from the corresponding author upon reasonable request.
Artificial Intelligence (AI) Disclosure Statement: The authors declare that generative artificial intelligence and AI-enabled tools were used solely for grammatical and stylistic correction of the manuscript. These tools were not used for content generation, data analysis, results interpretation, or scientific conclusions. The authors bear full responsibility for the accuracy, integrity, and originality of the work.
ABSTRACT
Autism spectrum disorder (ASD) is a neurodevelopmental condition with a steadily increasing global prevalence. Despite advances in early diagnosis and intervention, children with ASD and their families continue to face significant challenges related to healthcare access, social inclusion, and stigma. These challenges are particularly pronounced in low- and middle-income countries but remain relevant worldwide. This narrative literature review synthesizes evidence on social, medical, and structural barriers affecting children with ASD, with a focus on healthcare access, comorbidity-related medical vulnerability, and public stigma in Kazakhstan and internationally. Databases including PubMed, Scopus, Web of Science, Google Scholar, eLIBRARY.ru, and KazNEB were searched for Russian- and English-language publications Access to ASD-specific services—such as early intervention, behavioral therapy, and speech and neuropsychological support—remains limited due to shortages of trained specialists, long waiting lists, and high out-of-pocket costs. Children with ASD frequently have comorbid chronic conditions, increasing their need for general healthcare, yet health systems are often poorly adapted to their sensory, communicative, and behavioral needs. Persistent stigma across social, educational, and medical settings further restricts access to care, while socioeconomic inequalities exacerbate disparities. Overall, children with ASD, particularly those with comorbidities, constitute a highly medically vulnerable population. Addressing these challenges requires integrated policy approaches, workforce development, expansion of publicly funded services, and targeted efforts to improve public awareness and reduce stigma.
CITATION
Mofa S, Omarkulov B, Delellis N, Nukeshtayeva K. Challenges in Healthcare Access and Social Inclusion of Children with Autism Spectrum Disorder: Evidence from Kazakhstan and International Studies. J CLIN MED KAZ. 2026;23(4):95-102.
https://doi.org/10.23950/jcmk/19046
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